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Sun Aug 04, 2013 1:56 pm  |
I'm just gonna keep posting in here to push this thread to the top of the page.
I don't know how much digging around people have done on AMVC, but I've found accounts from people on different forums ranging from as far back as mid-2001. Literature suggests that AMVC is very "rare" but I'm thinking in the worst scope of things, if all of us experiencing this really have this "disease," then this thing is EXTREMELY underdiagnosed. It truly needs to be brought to major medical attention...but I feel we don't have a good chance at getting this issue to be under the spotlight because dermatologists always brush it off, say AMVC doesn't exist, or just say we have acne scarring.
I'm hoping I'm able to place links into my posts by this point now, but here are just a few things you guys can read (although they won't lift your spirits in any way):
http://www.bioline.org.br/request?dv08186
^ This talks about all types of scarring and conditions under which they can occur, and AMVC is noted in here.
http://www.benzobuddies.org/forum/index.php?topic=85657.0
^ A post from only a few weeks ago on some random forum I've never heard of, but this guy claims to have the same condition as we all do.
http://www.jpad.org.pk/Oct%20Dec%202012/18.%20Case%20report%20Atrophia%20macularis%20cutis.pdf
^ A case study from 2012 I'm assuming in which a 4-year old girl was actually diagnosed with AMVC. What concerns me is that picture wise, her scars seem to be darker in color than her actual skin color...I'm not sure whether this is due to her natural skin color or if AMVC scarring should actually be discolored? Because as far as I'm concerned, my scarring is not discolored in any way. One key point of this study is that a histopathological examination of the girl's facial skin revealed normal epidermis and mild elastic fibre degeneration in the dermis.
Anyways, I'm still waiting to hear back from a body check up, but I honestly do not think it will tell me much in terms of skin scarring. I'm sure the family doctor I went to will be able to give me referrals to dermatologists, but even at that, I don't think the medical community can help with this "disease" at this point. But if anyone come across interesting studies or cases about AMVC, please post in here. I know I'm kind of backtracking on myself since I previously told everyone to take AMVC as something that may not exist, but I'm starting to feel that at the end of the day, medically speaking, this is the
only diagnosis out there that we can play off of.
So perhaps we as individuals alone cannot persuade a dermatologist or doctor to help, but if we can gather enough "proof" per say, I'm thinking we should all as a group take action and try bringing this thing to the American Board of Dermatology or something. I'm not kidding. One on one with medical professionals, we won't be taken too seriously, right? But if there are so many people who've experienced spontaneous scarring on their faces throughout the years, this clearly is not THAT rare (although yes, maybe rare in the grand scheme of skin problems). And it's most definitely the scariest and most depressing of skin issues to go through. I'm sure many of us here would gladly be willing to go back to having regular pimples or hyperpigmentation as opposed to having these scars, right? |
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Wed Aug 07, 2013 5:44 am |
Hi.
I've skimmed read this thread, so sorry if I have missed out on some points. Just a quick note: do you think perhaps you may have a very severe compromised/damaged skin barrier?
I'm not sure if that ties in with your twitching etc, but perhaps you have more than one thing simultaneously but not directly linked??
I suffer from a ruined skin barrier, and within a couple of months I had millions of fine lines, enlarged pores that 'connected' to form lines, indented scars etc occur. Perhaps whilst searching for other answers, you could use a barrier repair cream? I have acne also, and I find Cerave doesn't make me break out, and is formulated for ruined skin barriers.
Perhaps for the lines on your knees and face it may also be a deficiency in skin lipids/ceramides so perhaps a ceramide supplement like lipowheat could help?
Obviously do some research on these things if they seem right for you before plunging into it. I'm not a skin specialist or anything, just trying to offer some advice.
*dream* |
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Wed Aug 07, 2013 6:19 pm |
Hi dream,
Have you been able to fix your compromised skin barrier? Who diagnosed you with this? And what products do you use for this issue?
Thanks. |
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Wed Aug 07, 2013 8:37 pm |
| *dream* wrote: |
Hi.
I've skimmed read this thread, so sorry if I have missed out on some points. Just a quick note: do you think perhaps you may have a very severe compromised/damaged skin barrier?
I'm not sure if that ties in with your twitching etc, but perhaps you have more than one thing simultaneously but not directly linked??
I suffer from a ruined skin barrier, and within a couple of months I had millions of fine lines, enlarged pores that 'connected' to form lines, indented scars etc occur. Perhaps whilst searching for other answers, you could use a barrier repair cream? I have acne also, and I find Cerave doesn't make me break out, and is formulated for ruined skin barriers.
Perhaps for the lines on your knees and face it may also be a deficiency in skin lipids/ceramides so perhaps a ceramide supplement like lipowheat could help?
Obviously do some research on these things if they seem right for you before plunging into it. I'm not a skin specialist or anything, just trying to offer some advice.
*dream* |
Interesting point you brought up, thanks. I honestly would have no way of knowing, though. One thing I can tell you is that I don't use moisturizer on my face (ironically I had been using CeraVe's moisturizing lotion as well, previously, but stopped for a while). I don't use it simply because my skin is not dry at all - if anything, it feels fine. My skin has always been very oily. A few months ago in the midst of this scarring fiasco, I had decided to give CeraVe a try again but the scarring problems continued so I figured had my skin barrier been weak or compromised in any way, the lotion would have helped. But point is I exhibit no signs of dry skin, which is supposed to be the key sign of possible ceramide deficiency/skin barrier weakness.
Like Compass said, please do tell us how you came about knowing you had a ruined skin barrier. It could possibly help us or others who are suffering from this craziness. Thanks! |
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Wed Aug 07, 2013 9:41 pm |
| Compass wrote: |
Hi dream,
Have you been able to fix your compromised skin barrier? Who diagnosed you with this? And what products do you use for this issue?
Thanks. |
Hi Compass,
I haven't as yet found a solution for my ruined skin barrier, though I am seeing a little improvement lately. A paramedical skin specialist and cosmetic skin specialist both told me I had severely dehydrated skin and a ruined skin barrier.
At the moment I have stopped using actives and am using simple products that don't dry me out, as well as Cerave. I am looking at the Epionce Medical Barrier Cream as my next step.
*dream* |
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Fri Aug 09, 2013 4:18 am |
Boafriend have you looked at PRP (Platelet Rich Plasma) as a way of possibly helping your skin degeneration/random scarring? It may be something to look into as a way to help your skin whilst you wait for a diagnoses.
Also I am looking at the Epionce line for repairing my skin barrier, and though you have tried Cerave and don't seem to exhibit the *usual* signs of a compromised skin barrier, it may be worth using the products to keep your skin barrier at its optimum, and they have other products I think that help cell turnover.
There is a thread on this forum about Epionce. I can't seem to post the link as I am a new member, but just do a search for it and it should come up. 
Anyway, food for thought.
*dream* |
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Fri Aug 09, 2013 9:51 pm |
| *dream* wrote: |
Boafriend have you looked at PRP (Platelet Rich Plasma) as a way of possibly helping your skin degeneration/random scarring? It may be something to look into as a way to help your skin whilst you wait for a diagnoses.
Also I am looking at the Epionce line for repairing my skin barrier, and though you have tried Cerave and don't seem to exhibit the *usual* signs of a compromised skin barrier, it may be worth using the products to keep your skin barrier at its optimum, and they have other products I think that help cell turnover.
There is a thread on this forum about Epionce. I can't seem to post the link as I am a new member, but just do a search for it and it should come up.
Anyway, food for thought.
*dream* |
I haven't looked into anything too complicated for the time being because I really do not know what is causing all this. But PRP for skin treatment is pretty crazy (they use your own blood) and it doesn't solve my issue at hand right now. People previously brought up calcium deficiency and what not as a possibility (at least in Acne.org's AMVC thread), but my bloodwork showed normal levels. Then there's the whole Omega 3 and Omega 6 imbalance theory, but there's no way I can check for that.
And at this point, I have to know whether my skin barrier is really damaged or not, you know? Because I don't exhibit any signs of dryness or irritation, so I don't get how I could have this. But yes, I will continue to use CeraVe again just to be safe.
Thanks for the Epionce recommendation. I have looked at the thread, but again - I have to know whether my skin barrier is actually problematic before I take any action.
Currently, I'm waiting to hear back from a naturopath to go in and see him (I've had a phone consultation already). |
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Sat Aug 10, 2013 3:15 am |
| boafriend wrote: |
I haven't looked into anything too complicated for the time being because I really do not know what is causing all this. But PRP for skin treatment is pretty crazy (they use your own blood) and it doesn't solve my issue at hand right now. People previously brought up calcium deficiency and what not as a possibility (at least in Acne.org's AMVC thread), but my bloodwork showed normal levels. Then there's the whole Omega 3 and Omega 6 imbalance theory, but there's no way I can check for that.
And at this point, I have to know whether my skin barrier is really damaged or not, you know? Because I don't exhibit any signs of dryness or irritation, so I don't get how I could have this. But yes, I will continue to use CeraVe again just to be safe.
Thanks for the Epionce recommendation. I have looked at the thread, but again - I have to know whether my skin barrier is actually problematic before I take any action.
Currently, I'm waiting to hear back from a naturopath to go in and see him (I've had a phone consultation already). |
I had one PRP treatment, and it is used to help regenerate the skin and is good (apparently) for acne scars, so it may help your scarring also, once you find out what you have. I can't speak of the results yet as I've just had it done a few weeks ago, and need more treatments. Just suggesting it if the doctors say they"can't do anything" for you, which in my experience, seems to be the response they use most. 
Whether you do or do not have a omega deficiency, my suggestion would be to use 100% organic cold pressed hemp seed oil. It has the perfect ratio of omegas 3, 6 and 9, and it is good to take it for skin and heart health. Just sample it first though if you can, in case you're allergic. Also if you have a low platelet count I would proceed cautiously with it because apparently it can decrease platelet count making the blood thinner (nothing excessive, but just in case). I was taking it but had to stop when I read its effects on platelets. Since I am doing Platelet Rich Plasma, I want as many platelets in my skin lol, and I was just worried if my count was down.
Sigh. Having bad skin really sucks! 
*dream* |
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Sun Aug 11, 2013 6:47 pm |
^ Thanks for your tips. I'll wait after my naturopath visit tomorrow to see.
And is anyone going to come back into this thread? WorriedMom? Compass? Any updates? |
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Mon Aug 12, 2013 2:18 pm |
| boafriend wrote: |
| ^ Thanks for your tips. I'll wait after my naturopath visit tomorrow to see. |
How did the visit go? Did the naturopath offer any helpful advice?
*dream* |
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Mon Aug 12, 2013 11:24 pm |
| *dream* wrote: |
| boafriend wrote: |
| ^ Thanks for your tips. I'll wait after my naturopath visit tomorrow to see. |
How did the visit go? Did the naturopath offer any helpful advice?
*dream* |
The visit was good. The guy was very attentive and listened to my problems. He consulted me more on what was going on inside my home (negative environment) and career wise. I've been facing a lot of pressure and stress, and he feels that the stress is a key factor in a lot of my symptoms. In terms of my scarring and prickling sensations, he unfortunately wasn't able to really help with that. I brought up the omega 3 and 6 imbalance thing and he said my consumption of lots of fish shouldn't have this type of effect on me. He said generally an excess of omega 6 is what can cause weird reactions in the body. I even mentioned my brief 2 week stint on liquid MSM and he shook his head, saying it shouldn't negatively effect the body to this extent. His only help was to try detoxifying the body of metal build up that may have accumulated from the long-time fish consumption and also trying of detoxifying stress in the body. He gave me a health plan of a number of things to take to see if it will all help, so that's currently what I will be doing. Maybe this will help the twitching and prickling.
He pretty much echoed what a family doctor previously said to me - that stress can cause a lot of weird, unexplainable symptoms in the human body (pretty much saying that the scarring can somewhow be related). But I'm technically still back at square one.
I feel right now if no derms or general doctors are able to help, then there must be other factors or reasons that can be causing all this - factors and reasons that doctors cannot find through blood testing or what not. So I think turning to a naturopath or holistic doctor may help in some sense. |
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Tue Aug 13, 2013 6:44 pm |
| boafriend wrote: |
| *dream* wrote: |
| boafriend wrote: |
| ^ Thanks for your tips. I'll wait after my naturopath visit tomorrow to see. |
How did the visit go? Did the naturopath offer any helpful advice?
*dream* |
The visit was good. The guy was very attentive and listened to my problems. He consulted me more on what was going on inside my home (negative environment) and career wise. I've been facing a lot of pressure and stress, and he feels that the stress is a key factor in a lot of my symptoms. In terms of my scarring and prickling sensations, he unfortunately wasn't able to really help with that. I brought up the omega 3 and 6 imbalance thing and he said my consumption of lots of fish shouldn't have this type of effect on me. He said generally an excess of omega 6 is what can cause weird reactions in the body. I even mentioned my brief 2 week stint on liquid MSM and he shook his head, saying it shouldn't negatively effect the body to this extent. His only help was to try detoxifying the body of metal build up that may have accumulated from the long-time fish consumption and also trying of detoxifying stress in the body. He gave me a health plan of a number of things to take to see if it will all help, so that's currently what I will be doing. Maybe this will help the twitching and prickling.
He pretty much echoed what a family doctor previously said to me - that stress can cause a lot of weird, unexplainable symptoms in the human body (pretty much saying that the scarring can somewhow be related). But I'm technically still back at square one.
I feel right now if no derms or general doctors are able to help, then there must be other factors or reasons that can be causing all this - factors and reasons that doctors cannot find through blood testing or what not. So I think turning to a naturopath or holistic doctor may help in some sense. |
I recall once a neurologist saying that pricking sensations in the limbs are usually nerve related, that they aren't functioning properly or even dying. I'm paraphrasing here, but perhaps a neurologist may be able to help??
I have read that stress can disrupt skin barrier function and also increase natural cell killer activity:
| Quote: |
Abstract
Despite clear exacerbation of several skin disorders by stress, the effect of psychologic or exertional stress on human skin has not been well studied. We investigated the effect of three different stressors, psychologic interview stress, sleep deprivation, and exercise, on several dermatologic measures: transepidermal water loss, recovery of skin barrier function after tape stripping, and stratum corneum water content (skin conductance). We simultaneously measured the effects of stress on plasma levels of several stress-response hormones and cytokines, natural killer cell activity, and absolute numbers of peripheral blood leukocytes. Twenty-five women participated in a laboratory psychologic interview stress, 11 women participated in one night of sleep deprivation, and 10 women participated in a 3 d exercise protocol. The interview stress caused a delay in the recovery of skin barrier function, as well as increases in plasma cortisol, norepinephrine, interleukin-1beta and interleukin-10, tumor necrosis factor-alpha, and an increase in circulating natural killer cell activity and natural killer cell number. Sleep deprivation also decreased skin barrier function recovery and increased plasma interleukin-1beta, tumor necrosis factor-alpha, and natural killer cell activity. The exercise stress did not affect skin barrier function recovery, but caused an increase in natural killer cell activity and circulating numbers of both cytolytic T lymphocytes and helper T cells. In addition, cytokine responses to the interview stress were inversely correlated with changes in barrier function recovery. These results suggest that acute psychosocial and sleep deprivation stress disrupts skin barrier function homeostasis in women, and that this disruption may be related to stress-induced changes in cytokine secretion.
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Link: http://www.ncbi.nlm.nih.gov/pubmed/11511309
I'm sure that reducing stress, and excercising to help decrease stress and increase blood flow to nerves and tissues will help.
I'm sorry if I missed it in your previous posts, but have your been harsh and over exfoliated your skin previously? I have, and a cosmetic skin specialist told me about the Hayflick theory of aging when my skin seemed to age and become so ruined within a couple of months.
There is a thread on here about Hayflick theory: http://www.essentialdayspa.com/forum/viewtopic.php?tid=11323
Hope something there can help. I'll try to do some research and see if I can come up with anything.
*dream* |
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Tue Aug 13, 2013 6:51 pm |
| *dream* wrote: |
I recall once a neurologist saying that pricking sensations in the limbs are usually nerve related, that they aren't functioning properly or even dying. I'm paraphrasing here, but perhaps a neurologist may be able to help??
I have read that stress can disrupt skin barrier function and also increase natural cell killer activity:
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I posted my personal experience with this earlier on the thread...my scalp tingles when I am very stressed, and it drove me NUTS. |
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No longer answering PM's due to numerous weird messages. |
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Tue Aug 13, 2013 7:16 pm |
| bethany wrote: |
| *dream* wrote: |
I recall once a neurologist saying that pricking sensations in the limbs are usually nerve related, that they aren't functioning properly or even dying. I'm paraphrasing here, but perhaps a neurologist may be able to help??
I have read that stress can disrupt skin barrier function and also increase natural cell killer activity:
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I posted my personal experience with this earlier on the thread...my scalp tingles when I am very stressed, and it drove me NUTS. |
It has happened to me before when I'm under pressure, say for university, but only on my crown area. Happens more when I wear a hat!
I like to think it means I'm using all my brain power  |
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Tue Aug 13, 2013 8:36 pm |
| *dream* wrote: |
I like to think it means I'm using all my brain power |
Lol!! |
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No longer answering PM's due to numerous weird messages. |
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Wed Aug 14, 2013 11:08 am |
| *dream* wrote: |
| boafriend wrote: |
| *dream* wrote: |
| boafriend wrote: |
| ^ Thanks for your tips. I'll wait after my naturopath visit tomorrow to see. |
How did the visit go? Did the naturopath offer any helpful advice?
*dream* |
The visit was good. The guy was very attentive and listened to my problems. He consulted me more on what was going on inside my home (negative environment) and career wise. I've been facing a lot of pressure and stress, and he feels that the stress is a key factor in a lot of my symptoms. In terms of my scarring and prickling sensations, he unfortunately wasn't able to really help with that. I brought up the omega 3 and 6 imbalance thing and he said my consumption of lots of fish shouldn't have this type of effect on me. He said generally an excess of omega 6 is what can cause weird reactions in the body. I even mentioned my brief 2 week stint on liquid MSM and he shook his head, saying it shouldn't negatively effect the body to this extent. His only help was to try detoxifying the body of metal build up that may have accumulated from the long-time fish consumption and also trying of detoxifying stress in the body. He gave me a health plan of a number of things to take to see if it will all help, so that's currently what I will be doing. Maybe this will help the twitching and prickling.
He pretty much echoed what a family doctor previously said to me - that stress can cause a lot of weird, unexplainable symptoms in the human body (pretty much saying that the scarring can somewhow be related). But I'm technically still back at square one.
I feel right now if no derms or general doctors are able to help, then there must be other factors or reasons that can be causing all this - factors and reasons that doctors cannot find through blood testing or what not. So I think turning to a naturopath or holistic doctor may help in some sense. |
I recall once a neurologist saying that pricking sensations in the limbs are usually nerve related, that they aren't functioning properly or even dying. I'm paraphrasing here, but perhaps a neurologist may be able to help??
I have read that stress can disrupt skin barrier function and also increase natural cell killer activity:
| Quote: |
Abstract
Despite clear exacerbation of several skin disorders by stress, the effect of psychologic or exertional stress on human skin has not been well studied. We investigated the effect of three different stressors, psychologic interview stress, sleep deprivation, and exercise, on several dermatologic measures: transepidermal water loss, recovery of skin barrier function after tape stripping, and stratum corneum water content (skin conductance). We simultaneously measured the effects of stress on plasma levels of several stress-response hormones and cytokines, natural killer cell activity, and absolute numbers of peripheral blood leukocytes. Twenty-five women participated in a laboratory psychologic interview stress, 11 women participated in one night of sleep deprivation, and 10 women participated in a 3 d exercise protocol. The interview stress caused a delay in the recovery of skin barrier function, as well as increases in plasma cortisol, norepinephrine, interleukin-1beta and interleukin-10, tumor necrosis factor-alpha, and an increase in circulating natural killer cell activity and natural killer cell number. Sleep deprivation also decreased skin barrier function recovery and increased plasma interleukin-1beta, tumor necrosis factor-alpha, and natural killer cell activity. The exercise stress did not affect skin barrier function recovery, but caused an increase in natural killer cell activity and circulating numbers of both cytolytic T lymphocytes and helper T cells. In addition, cytokine responses to the interview stress were inversely correlated with changes in barrier function recovery. These results suggest that acute psychosocial and sleep deprivation stress disrupts skin barrier function homeostasis in women, and that this disruption may be related to stress-induced changes in cytokine secretion.
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Link: http://www.ncbi.nlm.nih.gov/pubmed/11511309
I'm sure that reducing stress, and excercising to help decrease stress and increase blood flow to nerves and tissues will help.
I'm sorry if I missed it in your previous posts, but have your been harsh and over exfoliated your skin previously? I have, and a cosmetic skin specialist told me about the Hayflick theory of aging when my skin seemed to age and become so ruined within a couple of months.
There is a thread on here about Hayflick theory: http://www.essentialdayspa.com/forum/viewtopic.php?tid=11323
Hope something there can help. I'll try to do some research and see if I can come up with anything.
*dream* |
Thank you for the continuous posts of support. Bethany, too.
To answer your questions, I honestly may have overdone exfoliating unknowingly in 2 months prior to my skin going crazy on me. I bought an Olay Pro-X brush cleanser and used it once daily (night time). Problem is, this device is deemed safe to use daily, so I don't see how this could have wrecked havoc to the point of random scarring occurring. Although technically daily cleansing, the fact that the device uses a brush head may have deemed it to be more of daily exfoliation than just pure cleansing. I'm just fishing for cards here, so I don't know for sure.
AHA/BHA wise, I didn't and don't use anything containing this. I didn't in the months prior to this scarring fiasco, either.
I did use a Japanese toner which contains fermented yeast/sake extract (cheap dupe of SK-II) around January-February, but...it doesn't seem logical to me that a mere toner could be the catalyst in such a crazy reaction in the skin.
In terms of stress, I have been stressed out whether physically or emotionally due to searching for a job (I'm a graduate so I'm fresh on the market) and this scarring and twitching/tingling has wrecked my self esteem and happiness. The naturopath I went to said I could even have subconscious stress that is stressing me out. My environment at home is tense as hell too, with my parents NAGGING me on the daily about my job searching, in addition to forcing me to go take my real estate license exam when it's not something I see as important given my current career status. There's a lot of negative reinforcement from my mom and it's a very suffocating roof to be under.
I have been running daily since January or so to keep my cool as an escape from all this stress and unhappiness, so I would think it would alleviate the worst of my stress, but...I guess as the naturopath I saw said, my home environment and parents (mainly mom since I live with her) are the "toxins" that are driving me nuts.
I emailed Lamar1986 who was active in the AMVC scarring thread on Acne.org (I know Compass had been in touch with him as well) and he pretty much echoed the notion that an imbalance on omega 3 seems to be the culprit for most people who've experienced spontaneous scarring. Although my naturopath says otherwise, Lamar claims there is research that shows an abundance of omega 3 can cause problems as well. *shrug* The only reassuring thing I got out of him is that this scarring will stop....but it's just a matter of when and it's a matter of avoiding omega 3 (he suggests avoiding dairy and refined sugars, too). |
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Thu Aug 15, 2013 12:07 am |
I'm surprised the naturopath wasn't more concerned about the excessive consumption of fish. Don't doctors warn about not eating more than 2 servings a week because of the mercury levels in fish? It also depends on what kind of fish you eat, if you eat farm raised fish I've heard they have even more toxins in them. I also avoid fish from China, I think it's pretty contaminated. Mercury can affect the neurological system, maybe it could be causing those sensations. Some people are geneticly more sensitive to mercury and retain it longer in the body.
And do you use any skin lightening products? They also can contain mercury. A lot of cosmetics can contain lead, mercury, arsenic, it's something to watch out for.
| Quote: |
| Mercury in skin lightening products may also cause skin rashes, skin discoloration and scarring, as well as a reduction in the skin’s resistance to bacterial and fungal infections. |
http://www.who.int/ipcs/assessment/public_health/mercury_flyer.pdf |
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Thu Aug 15, 2013 2:06 pm |
| wishful skin wrote: |
I'm surprised the naturopath wasn't more concerned about the excessive consumption of fish. Don't doctors warn about not eating more than 2 servings a week because of the mercury levels in fish? It also depends on what kind of fish you eat, if you eat farm raised fish I've heard they have even more toxins in them. I also avoid fish from China, I think it's pretty contaminated. Mercury can affect the neurological system, maybe it could be causing those sensations. Some people are geneticly more sensitive to mercury and retain it longer in the body.
And do you use any skin lightening products? They also can contain mercury. A lot of cosmetics can contain lead, mercury, arsenic, it's something to watch out for.
| Quote: |
| Mercury in skin lightening products may also cause skin rashes, skin discoloration and scarring, as well as a reduction in the skin’s resistance to bacterial and fungal infections. |
http://www.who.int/ipcs/assessment/public_health/mercury_flyer.pdf |
He did bring up the possibility of over-accumulation of metals in the body from the fish consumption, but definitely didn't go into detail. I was surprised he wasn't THAT concerned, either. I had a body check up done before I went to this naturopath and it showed nothing wrong, but this naturopath told me stuff such as metal/toxin buildup cannot be detected through simple blood and urine tests. He suggested an extensive urine test I could do, but it would cost $100 and would involve me having to collect my urine, so it didn't seem ideal. Which is why now I'm taking bentonite to detox any possible buildup and the naturopath also recommended a probiotic and a magnesium calm to help with my stress levels.
As for the fish I had, I'm guessing it was all farm raised? We bought all our fish from Costco, in those packs you'll find the in freezer section. I had a variety of fish too - salmon, cod, hake loins, etc, and this was throughout a period of 7 months or so, and looking back, the consumption was really insane. Daily, and two pieces each time.
As for skin lightening products, I have used them in the past (more of Asian "whitening" products or American brightening products), but they're in no way those legitimate "lightening products" that are known to contain mercury. I would never use anything like that. I am ingredient conscious, so I don't think I would have overlooked anything that dangerous. So I can attest that topically and cosmetically wise, none of my stuff could have caused this. At least to my knowledge. I use very gentle stuff now...very simple skincare.
So if it's not something topical that caused all this, then....I'm guessing it's all the internal accumulation (I hope at this point) that has caused all this madness. I really hope with short time, it stops and goes away. |
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Mon Aug 19, 2013 7:37 pm |
Any updates? New discoveries? Anyone?
WorriedMom hasn't updated with anything. |
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Fri Aug 30, 2013 11:08 am |
I'm continuing to push this thread back up to the first page of the forum.
No one is updating on anything?
I reached out to a dermatologist I saw last year who asked his colleagues and nearby dermatologists for anyone who could help with this problem and he unfortunately told me he received nothing helpful. He suggested I go see a infectious disease specialist.  |
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Fri Aug 30, 2013 2:37 pm |
Hi boafriend!
Glad to hear from you, I have no updates on this end I thought I noticed my baby's texture improving a little, i hope its not just my imagination. I've been hearing from Lamar and him reassuring me this will soon stop gives me alot of hope, and so I have been hopeful and praying.
What exactly did that doctor mean by that, does he think it could be Parasite or what?
How are the creams working for you as well as the detox clay? |
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Sat Aug 31, 2013 1:33 am |
| If the case is parasites go to curezone at the forum ''ask barefoot herbalist'' .He is the master in Deworming,he has teached Hulda Clark and is certified master herbalist ;)He has his forum in curezone for 9 years! |
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We shall not cease from exploration, and the end of all our exploring will be to arrive where we started and know the place for the first time. |
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Sat Aug 31, 2013 7:48 am |
My apologies for double posting ... I just posted the below in a different (wrong) thread. I'm copy/pasting it here because I'm not sure how to link directly to that post!
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There's no doubt that high level of mercury in fish is worrisome, but there's also some research saying that more important is the ratio of mercury to selenium. This article is an overview, not a research paper: http://chriskresser.com/is-eating-fish-safe-a-lot-safer-than-not-eating-fish
Also, about the O3:O6 ratio ... OP, have you been tested directly for this? If you're still concerned about it, you might want to look into that. You can ask your regular doctor about it, but I think it's more an "alternative" sort of thing, that you might have to pay for out of pocket. Various labs do this, for example:
http://www.lef.org/Vitamins-Supplements/ItemLCOMEGA/Omega-Score-Blood-Test.html |
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Sat Aug 31, 2013 10:58 pm |
| Compass wrote: |
Hi boafriend!
Glad to hear from you, I have no updates on this end I thought I noticed my baby's texture improving a little, i hope its not just my imagination. I've been hearing from Lamar and him reassuring me this will soon stop gives me alot of hope, and so I have been hopeful and praying.
What exactly did that doctor mean by that, does he think it could be Parasite or what?
How are the creams working for you as well as the detox clay? |
You're still able to talk to him? He never responded to my email and as we both figured, he seemed reluctant to go into detail about all this. I'm surprised you're able to still talk to him.
As for the dermatologist, he just merely made a suggestion since I brought up AMVC...he can't help me with it nor can anyone he knows. He just made a suggestion to see an infectious disease doctor if I feel some type of bacteria or virus may be doing this. I've already contacted one in my area, but my insurance doesn't cover a lot of things. The receptionist told me I'm out-of-network for this internal doctor/infectious disease doctor (he specializes in both), so I'd have to see what my deductible is and I have to call back on Tuesday to speak to another girl who works there who should be able to tell me how much I need to pay, since I don't know very detailed info regarding my insurance.
| bacchus wrote: |
My apologies for double posting ... I just posted the below in a different (wrong) thread. I'm copy/pasting it here because I'm not sure how to link directly to that post!
...
There's no doubt that high level of mercury in fish is worrisome, but there's also some research saying that more important is the ratio of mercury to selenium. This article is an overview, not a research paper: http://chriskresser.com/is-eating-fish-safe-a-lot-safer-than-not-eating-fish
Also, about the O3:O6 ratio ... OP, have you been tested directly for this? If you're still concerned about it, you might want to look into that. You can ask your regular doctor about it, but I think it's more an "alternative" sort of thing, that you might have to pay for out of pocket. Various labs do this, for example:
http://www.lef.org/Vitamins-Supplements/ItemLCOMEGA/Omega-Score-Blood-Test.html |
Thanks for your help. No, I've never been directly tested for any of this. I didn't even know it was possible to be tested for an omega 3:6 ratio. But I can imagine it'd be a more complicated test which I can guarantee my insurance will not cover. FML seriously.
Anyways, I will be seeing a neurologist on Tuesday to try addressing the twitching and prickling I've been experiencing this past half year. Problem is again...the receptionist there told me this neurologist doesn't perform any tests or scans on site, and that any of that would have to be done somewhere else....which means, she wouldn't be able to tell me if my insurance covers me or not. |
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Sun Sep 01, 2013 4:27 am |
Boafriend, while I prefer to find root causes of issues instead of just treating with drugs, it is not always possible.
When I was having the scalp tingling initially, they put me on Elavil which they also use for treating shingles related nerve pain...it worked wonders! Over time that stopped working unfortunately, and they put me on a very low dosage anti-anxiety med instead which also worked.
Until you find the root cause, I would consider also treating the symptom....it will make your daily life far more tolerable. |
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No longer answering PM's due to numerous weird messages. |
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