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mvtllw
New Member
Joined: 05 Apr 2012
Posts: 1
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Wed Apr 25, 2012 5:51 pm |
Hi, Fitgineer
This sounds a lot like the symptom my daughter started experiencing when she was 16. Her eyelid was usually (maybe always) normal when she woke up and the more tired she got the more her eyelid drooped. The doctor thought this was potentially important, and he turned out to be right. My daughter, who is doing very well and is not even on medication, was eventually diagnosed with myasthenias gravis, by a neurologist, after a series of test. I think she was 17 when she was finally diagnosed. In the beginning she was simply given a blood test. Some people are lucky, in terms of diagnosis ease, and are determined to have myasthenia gravis from that blood test. When her blood work said nothing was wrong, her doctor decided to send her for more tests, and each test came back normal. The doctor responded to each test by sending her higher and higher in the Kaiser system until she finally was sent to an outside-the-Kaiser-system doctor because Kaiser did not have the equipment for the definitive test (this was approximately 6 years ago so maybe they can do it in-house now). It took months for the outside-the-system appointment to be scheduled. The definitive test showed she did indeed have myasthenia gravis. You might want to consult with a neurologist, maybe one who specializes in myasthenia gravis as it is not common, and many doctors might not think of it or, if they did, might not keep pursuing to a definitive answer without more severe symptoms. I would bring the doctor as dramatic a photo as you can find. We brought a picture that was taken late one night at a party after my daughter had not had enough sleep the night before and then had had a long day before the party. In the photo one of her lids sat very low, yet seeing her eyelid like that in the picture really surprised her because the lid did not interfere with how well she could see so she didn't know it had been drooping dramatically. That photo proved instrumental; every time a test came back normal the doctor would look at that photograph and decide to just make sure.
It is very important to find out if you do have myasthenia gravis. |
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